Further information

Why has the Survivors' Information Needs Questionnare been developed?

More children and young people are surviving cancer than ever before.This is great news, and it means that we are becoming more aware of the late and long-term effects of the illness. But because little has been known about these effects until recently, there isn't much information around to help people who have these effects. The experiences you tell us via the Survivors' Information Needs Questionnare will show us what information survivors of childhood cancer need, so that CLIC Sargent can develop better publications both for survivors, and for children and young people on treatment.

How has the Survivors' Information Needs Questionnare being developed?

The Survivors' Information Needs Questionnare  was developed by CLIC Sargent's Research & Development and Information departments, with the input of professionals working with childhood cancer survivors and children and young people on treatment.

The Survivors' Information Needs Questionnare  is currently being tried out in several late effects and long-term follow up clinics across the UK. 

What personal information will I be asked for?

We will ask you to let us know whether you are male of female, the country where you live, your ethnicity, current age and age(s) at diagnosis and, if applicable, relapse. This is so we can identify any overall patterns in the data we receive.

We would like to be able to contact you in future for further information about your needs as a survivor and will ask you to tick a box if you are happy for us to do so.  Please be reassured that your details will not be passed on to any other organisation.

What will happen to the information I provide?

Your answers will be held on a secure server at CLIC Sargent's main office.  CLIC Sargent's Research and Development team will analyse the data and a report on the findings will be published.  This will be made available to anyone who completed the questionnaire. The questionnaire will ask you to tick a box if you are happy for us to use your words in quotes (eg. in reports, articles, information material).  All quotes will be kept anonymous.

Taking part

If you would like to take part in the survey, please complete our online form.

If you would like further information about the Survivors' Information Needs Questionnare  or the other research CLIC Sargent is carrying out into the needs of survivors, please contact the CLIC Sargent Helpline on 0800 197 0068.

Where can I get further support?

If you would like to talk to someone in confidence about any aspect of childhood cancer or how it has affected you, please contact the CLIC Sargent Helpline on 0800 197 0068 or helpline@clicsargent.org.uk

Thank you.