Other publications

Below is a list of useful publications and a brief summary of their contents. All of these publications are available to order online via our online order form, or by calling our Child Cancer Helpline on 0800 197 0068.

Children’s Cancers, a Parent’s Guide
A guide to help parents understand about childhood cancer, its treatments and likely effects on the family. (CCLG/Cancerbackup)

A Parent's Guide to Brain and Spinal Tumours in Young People
A guide for parents of children who have a brain or spinal tumour. (CCLG)

Helping Your Child to Eat
Guide to helping children eat healthily – particularly important when a child is on treatment. (CCLG and Royal Marsden NHS Trust)

End of Treatment... what happens next? A guide for parents
This booklet for parents and carers of children with cancer aims to help answer some of the many questions and concerns that arise when the child finishes treatment for cancer. (CCLG)

Follow Up: a guide for parents
This leaflet explains some of the possible follow up tests that may be necessary to check for any potential long term side effects. (CCLG) top of page

My Brother has Cancer
This is a story about a brother and sister of a child with cancer and how they cope with the illness and the changes it brings. It is aimed at brothers and sisters up to 9 years old. (CCLG)

Jack’s Diary
Storybook about a little boy called Jack who has Leukaemia. In the style of a diary, it describes in simple terms the affect it has on his life. (Leukaemia Research Fund)

Ben's Bone Marrow Transplant
A colourful illustrated booklet aimed at young children preparing for a bone marrow transplant. It follows the story of Ben, from his initial visit to the Bone Marrow Transplant Unit through treatment, managing side effects, exploring emotions and what happens after discharge from hospital. (CCLG)

Jess's Bone Marrow Donation
A colourful illustrated booklet aimed at children preparing to donate their bone marrow for a relative. (CCLG)

Will and Sophie have Radiotherapy
A colourful booklet for children following the story of Will who has radiotherapy to his brain and Sophie who has radiotherapy to her tummy. (CCLG)

Young Adults with Blood Cancer – What do I need to know?
Information about blood cancers for young adults. Describes what blood cancer is and its likely treatments and side effects.  Also contains chapters on how to tell family and friends, lifestyle and follow-up.  (Leukaemia Research Fund)

When Your Brother of Sister Gets Cancer
Describes what cancer is and how their brother or sister will be treated for it.  Focuses on the practical and emotional effects it is likely to have on their lives and includes sections on coping with school, feeling left out and coping with worry.  (CCLG) 

Stem Cell Transplant
Beautifully illustrated booklet for young people undergoing a stem cell transplant. (CCLG)

End of Treatment... what happens next?
This booklet aimed at 10-16 year olds aims to help answer the many questions and concerns that arise when young people finish their treatment for cancer.  (CCLG)

After Cure
After Cure is aimed at young people aged 16+ who have survived cancer. The booklet covers a variety of topics such as follow up and future care, education, jobs, disability issues, life insurance, mortgages, fertility, travel, information about survivor groups and useful links. The booklet can also be found on www.aftercure.org together with factsheets about the effects of different treatments on different parts of the body. (CCLG/CLIC Sargent) top of page

Grandparents
A guide for grandparents of children and young people with cancer. Provides information and addresses some of the questions grandparents are likely to have.  Suggests ways for grandparents to help their son / daughter and grandchildren, and obtain the support they need themselves.  (CCLG)

Resources for school staff
A leaflet to inform all school staff of potential sources of support when a pupil is returning to their school after treatment for cancer, or while still on treatment. (CCLG)

Welcome Back!
For teachers supporting children returning to school after cancer treatment.  Improves understanding about childhood cancer, its treatments and the problems it may cause children and young people at school, as well as their parents, siblings and classmates.  Offers practical suggestions for combating issues that may arise. (Cancer Research UK)

Children with a Brain Tumour in the Classroom
Information for teachers about brain tumours.  Describes how a brain tumour is likely to affect a child’s behaviour and learning and offers practical ideas for supporting the child while at school. Also suggests ways to aid communication between parents and teachers. (Cancer Research UK)

Children with cancer and pets
Information leaflet for parents and carers of children with cancer who own pets. Provides simple guidelines on reducing the risk of catching an infection from a pet. (CCLG)

Getting the best from the Internet? A guide to childhood cancer resources online
The internet is a rapidly growing source of information. This leaflet aims to help you find information on cancer care and treatment for young people and children that is reliable and user-friendly. (CCLG)

Dexamethasone
This leaflet offers help to parents in managing the behaviour of children during maintenance treatment for Acute Lymphoblastic Leukaemia (ALL) whilst taking Dexamethasone. (CCLG)

How to Help Brothers & Sisters
This leaflet provides ideas on how best to help brothers and sisters of children with cancer to cope with the illness. It is aimed at the many adults who come into contact with brothers and sisters such as aunts and uncles, grandparents and teachers etc. (CCLG) top of page

Leukaemia and Related Diseases
General information about the different types of blood cancers, how they are diagnosed and their main forms of treatment. Some of the language is quite technical - a list of terminology is included. (Leukaemia Research Fund)

Hodgkin’s Lymphoma
General information about Hodgkin’s Lymphoma and how it is diagnosed, treated and followed up.  Uses medical terminology.  (Leukaemia Research Fund)

Childhood Acute Lymphoblastic Leukaemia (ALL)
General information about ALL and how it is diagnosed, treated and followed up, as well as advice to help families cope. Uses medical terminology.  (Leukaemia Research Fund)

Non-Hodgkin’s Lymphoma (NHL)
General information about Non Hodgkin’s Lymphoma and how it is diagnosed, treated and followed up. Uses medical terminology. (Leukaemia Research Fund)

Childhood Acute Myeloid Leukaemia (AML)
General information about AML and how it is diagnosed, treated and followed up.  Uses medical terminology.  (Leukaemia Research Fund) top of page

Bereavement: where to go for help
A guide for families and professionals when a child or young person has died from cancer. (CCLG)

Choices (When if seems there are none)
A short, practical guide for parents whose child is dying from cancer. (CCLG)

Facing the Death of Your Child
Suggestions and help for families, before and afterwards. (CCLG) top of page