Other publications

We want to make sure you are able to access all the information you might need at this time. To do this, we make a wide range of complementary publications from other organisations available, as well as our own.

Below is a list of useful publications and a brief summary of their contents. All of these publications are available to order online via our online order form.

Ben's Bone Marrow Transplant
A colourful illustrated booklet aimed at young children preparing for a bone marrow transplant. It follows the story of Ben, from his initial visit to the Bone Marrow Transplant Unit through treatment, managing side effects, exploring emotions and what happens after discharge from hospital. (Children's Cancer and Leukaemia Group)

Jess's Bone Marrow Donation
A colourful illustrated booklet aimed at children preparing to donate their bone marrow for a relative. (CCLG)

My Brother has Cancer
This is a story about a brother and sister of a child with cancer and how they cope with the illness and the changes it brings. It is aimed at brothers and sisters up to 9 years old. (CCLG)

Ruby's Stem Cell Journey
A colourful booklet aimed at young children preparing for a stem cell harvest and transplant. It follows the story of Ruby, explaining in simple terms what it's like to have stem cells harvested and how you get them back. (CCLG)

What's the Point in Coming to Clinic?
This booklet for children explains the purpose of coming to clinic for follow up, the tests that are performed there, and the importance of adopting a healthy lifestyle. (CCLG)

When Your Brother or Sister Gets Cancer
This booklet, aimed at 9-16 year old brothers and sisters, explains the illness and its treatments. It contains quotes from brothers and sisters about their experiences. (CCLG)

Will and Sophie have Radiotherapy
A colourful booklet for children following the story of Will who has radiotherapy to his brain and Sophie who has radiotherapy to her tummy. (CCLG)

Wiggly's World
Illustrated booklet for children and parents, with explanations of words they might hear and procedures they might experience during treatment for cancer. (Leukaemia and Lymphoma Research). top of page

After Cure
After Cure is aimed at young people aged 16+ who have survived cancer. The booklet covers a variety of topics, such as follow up and future care, education, jobs, disability issues, life insurance, mortgages, fertilitiy, travel, information about survivors' groups and links. Accompanying factsheets can be downloaded from www.aftercure.org (CCLG)

Donating Your Stem Cells
A colourful guide for teenagers preparing to donate stem cells/bone marrow (CCLG)

End of Treatment... What Happens Next?
This booklet aimed at 10-16 year olds aims to help answer the many questions and concerns that arise when young people finish their treatment for cancer.  (CCLG)

Stem Cell Transplant
Beautifully illustrated booklet for young people undergoing a stem cell transplant. (CCLG)

When Your Brother of Sister Gets Cancer
Describes what cancer is and how their brother or sister will be treated for it.  Focuses on the practical and emotional effects it is likely to have on their lives and includes sections on coping with school, feeling left out and coping with worry.  (CCLG) 

Young Adults with Blood Cancer – What do I need to know?
Information about blood cancers for young adults. Describes what blood cancer is and its likely treatments and side effects.  Also contains chapters on how to tell family and friends, lifestyle and follow-up.  (Leukaemia and Lymphoma Research)

Young Person's Guide to Lymphoma
A booklet for young people with lymphoma, which explains the illness, it's treatment, and the impact it can have on a young person's life. (Lymphoma Association) top of page

Brain and Spinal Tumours in Children and Young People
This comprehensive guide to brain and spinal tumours covers all aspects, from initial diagnosis, to long-term follow up. Factsheets on individual tumour types accompany the guide. (CCLG)

Children's Cancer - a Parent's Guide
A guide to help parents understand about childhood cancer, it's treatments and likely affects on the family. (CCLG)

Children with Cancer and Pets
Information leaflet for parents and carers of children with cancer who own pets. Provides simple guidelines on reducing the risk in catching an infection. (CCLG)

Dexamethasone: a Self-help Guide for Parents
This leaflet offers help to parents in managing the behavious of children during maintenance treatment for Acute Lymphoblastic Leukaeamia (ALL) whilst taking Dexamethasone. (CCLG)

End of Treatment... What Happens Next? A Guide for Parents
This booklet for parents and carers of children with cancer aims to help answer some of the many questions and concerns that arise when the child finishes treatment. (CCLG)

Follow Up: A Guide for Parents
This leaflet explains some of the possible follow up tests that may be necessary to chock on any long term side effects. (CCLG)

Getting the Best from the Internet
The internet is a rapidly growing source of information. This leaflet aims to help you find information on cancer care and treatment for chlidren and young people. (CCLG)

Helping Your Child to Eat
Guide to helping children eat healthily - particularly important when a child is on treatment. (CCLG)

How to Help Brothers and Sisters
This leaflet provides ideas on how best to help brothers and sisters of children with cancer to cope with the illness. It is aimed at the many adults who come into contact with brothers and sisters such as aunts, uncles, grandparents and teachers etc. (CCLG)

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Grandparents
A guide for grandparents of children and young people with cancer. Provides information and addresses some of the questions grandparents are likely to have.  Suggests ways for grandparents to help their son / daughter and grandchildren, and obtain the support they need themselves.  (CCLG)

Resources for school staff
A leaflet to inform all school staff of potential sources of support when a pupil is returning to their school after treatment for cancer, or while still on treatment. (CCLG)

Welcome Back!
For teachers supporting children returning to school after cancer treatment.  Improves understanding about childhood cancer, its treatments and the problems it may cause children and young people at school, as well as their parents, siblings and classmates.  Offers practical suggestions for combating issues that may arise. (Cancer Research UK)

Children with a Brain Tumour in the Classroom
Information for teachers about brain tumours.  Describes how a brain tumour is likely to affect a child’s behaviour and learning and offers practical ideas for supporting the child while at school. Also suggests ways to aid communication between parents and teachers. (Cancer Research UK)

Childhood Acute Lymphoblastic Leukaemia (ALL)
General information about ALL and how it is diagnosed, treated and followed up, as well as advice to help families cope. Uses medical terminology. (Leukaemia and Lymphoma Research)

Childhood Acute Myeloid Leukaemia (AML)
General information about AML and how it is diagnosed, treated and followed up.  Uses medical terminology.  (Leukaemia and Lymphoma Research)

Hodgkin’s Lymphoma
General information about Hodgkin’s Lymphoma and how it is diagnosed, treated and followed up.  Uses medical terminology.  (Leukaemia and Lymphoma Research)

Leukaemia and Related Diseases
General information about the different types of blood cancers, how they are diagnosed and their main forms of treatment. Some of the language is quite technical - a list of terminology is included. (Leukaemia and Lymphoma Research)

Non-Hodgkin’s Lymphoma (NHL)
General information about Non Hodgkin’s Lymphoma and how it is diagnosed, treated and followed up. Uses medical terminology. (Leukaemia and Lymphoma Research)
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Choices, When it Seems Like There Are None
Suggestions for parents when curative treatment is no longer and option. (CCLG)

Facing the Death of Your Child
A guide for families covering all apsects of beraevement. (CCLG)

Managing Symptoms at Home - Palliative Care Information for Parents
This booklet is about the phase of treatment where cure is no longer possible and is concerned with managing symptoms and quality of life. (CCLG) top of page

Bereavement: Where to Go for Help
A guide for families and professionals when a child or young person has died from cancer. (CCLG) top of page